Researchers at Massachusetts General Hospital are seeking
individuals for participation in the ALS Gene Study, conducted by Dr. Robert H.
Brown. This study focuses on finding the causes of ALS through an examination of
both the genetics and environmental factors that may cause or increase the risk
of developing amyotrophic lateral sclerosis (ALS).
The purpose of this study is to identify 'susceptibility genes,' which are genes
that may be associated with a higher risk of developing this disease. Also, the
researchers wish to recognize possible environmental risk factors that may be
involved in causing ALS.
This study includes individuals with ALS and possibly some family members. We
are also recruiting unrelated, unaffected individuals as population controls,
such as spouses and friends.
Participation requires a one-time blood sample, and completion of questionnaires
about environmental and family history, and permission to review medical records
pertaining to the onset and progression of the disease. All costs are covered
and travel to Boston is not necessary. Arrangements can be made to have
participants' blood drawn locally.
To help find a cure, please contact:
Nicole Couture
Massachusetts General Hospital
Cecil B. Day Laboratory
114 Sixteenth Street, rm 3125
Charlestown, MA 02129
Telephone: 617-726-5750
Email:
ncouture@partners.org
*Editors Note - From Nicole: We are so very grateful to all those that are helping us to fight this terrible disease. Our study has been on going for 20 years and I/we will continue to recruit until the day we finally find a cause and a cure.
MGM
© ALS Independence 2003-08