Manual for People Living With ALS – Now Available

Click here to download  http://www.als.ca/als_manuals.aspx

Toronto, February 3, 2005: The third edition of the Manual for People Living with ALS Manual is an excellent educational resource and tool. It helps readers to organize personal health information and stimulate discussion between patients, family members, and their health-care providers about managing ALS care and coping with an often rapidly progressive neurological condition. The Manual will be available in French later this year.


Director of services and education Jane McCarthy says, “This is a comprehensive resource that reflects input from a wide variety of healthcare professionals across Canada. The review committee included three neurologists, a physiatrist, two people with ALS and current and former caregivers. We are confident that the Manual will be perceived as a valuable resource, especially for those recently diagnosed with ALS.”

What is covered in the Manual?

• An overview of ALS, signs and symptoms, research status:

• Tips and tools for persons with ALS and family caregivers

• Where to go for help and support (local support information can be obtained from provincial ALS Societies)

• Disease management information about who makes up the ALS health-care team, mobility and independence, swallowing and nutrition, speech and communication, breathing and lung function, oral care, end-of-life issues, and advance-care planning

• Assistive equipment and activities of daily living

• Legal and financial considerations

• Education and support resources
  
  
  On-Line Functions of the Manual:
   

• It is completely searchable using the binoculars on the top of your screen.

• The table of contents is linked to their appropriate page

• Every page has a return to main menu page, which takes the back to the table of contents.

• Every web site is active, by clicking on anything that is underlined in the document it will take you to that web site.
  
  
  Hard copies will soon be available through local Provincial ALS Societies or the ALS Society of Canada. To order, contact your Provincial Society or call the ALS Society of Canada at 1-800-267-4257. For a PDF print-only version, download from our web site -- http://www.als.ca/als_manuals.aspx 
  
  No fee is charged for the manual when ordered by people living with ALS, their caregivers, or their healthcare providers. Libraries, schools, health-care facilities, other organizations, and interested healthcare professionals who are not currently involved in ALS care may obtain the Manual through the ALS Society of Canada for a charge of $20.00.
  
  ALS (sometimes called Lou Gehrig’s disease) is a progressive neuromuscular disorder. ALS attacks motor neurons and results in the progressive loss of movement and paralysis, while leaving mental faculties largely untouched.
  
  The ALS Society of Canada is the national voluntary health organization committed to supporting research into a cure for ALS and to support provincial partners in the provision of quality care for persons affected by ALS.
  
  For more information:
  
  Bobbi Greenberg
  Director of Communications
  416-497-2267 ext. 208
  bg@als.ca 
   

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